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Leeds & West Yorkshire CFS/ME Service

 CFS TEAM

What is the Leeds & West Yorkshire Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) Service?

We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Chronic Fatigue Syndrome (CFS), also referred to as Myalgic Encephalomyelitis (ME).

The vast majority of patients who attend the service are Outpatients, but we also offer a Home based Rehabilitation Service to those individuals with CFS/ME who are primarily housebound. We also work in collaboration with Yorkshire Centre for Psychological Medicine, which is an inpatient unit based at the Leeds General Infirmary providing more intensive assessment/rehabilitation for severely affected patients.

The Team

We have a multidisciplinary team who provide assessment and rehabilitation, for people who have a diagnosis of CFS/ME.   We have a GP with a Special Interest in CFS/ME, Senior Occupational Therapists, a Senior Physiotherapist, Cognitive Behavioural Therapists, Dietician, Nursing and Specialist Medical Staff from Liaision Psychiatry.  There is a clinical lead and team manager and the whole team is supported by administrative staff.

What people say about our service

"Service is of an extremely high standard. Extremely professional. Their knowledge of CFS/ME is very good. The treatment works."

"The service has helped me to acknowledge and come to terms with my condition."

"The group sessions have helped me to identify what I can do to manage the condition."

"Comprehensive service. Helpful dealing with workplace and related issues. Flexible with number of appointments and ability to make more as necessary."

"I may not be fully recovered but I now have strategies for managing my condition and have dealt with negative feelings."

How can I arrange an assessment?

People need to be referred to the service by their GP or other health professional involved in their care. They will need to make a referral to us and complete our required blood tests. For people outside of Leeds, you may need to speak to your GP about additional funding for our services because of the way all services are funded.

There is no test to tell whether someone has CFS/ME. Therefore, the diagnosis is largely dependent on the history of the symptoms and exclusion of other illnesses. We make sure that other illnesses have been excluded by the GP or other health professional involved in the patient's care, which means individuals undergoing some routine investigations, including blood tests, before first coming to the service.

We then write to the patient to request that they contact us to arrange a suitable time to come for the initial assessment. Patients will be offered an appointment within 13 weeks from the date we receive the referral.

Area covered

Typically, our referrals come from Leeds and surrounding areas in Yorkshire, but we do accept referrals from outside this area.

Location

The service is currently based at the Newsam Centre at Seacroft Hospital in Leeds.

Contact details

CFS/ME Service
Therapy Suite, 1st Floor
Newsam Centre
Seacroft Hospital
York Road
LEEDS
LS14 6WB

Tel. 0113 8556330/1/4

email: cfsme.lypft@nhs.net

Our service operates

Monday - Friday, 08.30 - 16.30